Lily-Rae Merchant-O’Hanlon, 11, from Nottingham, has Stargardt disease, an inherited eye condition which causes blurriness in the central part of the eye, and is set to deteriorate.
Oscar winner Kate Winslet has donated thousands of pounds to help a young girl with a rare eye condition.
The British actress, best known for films including Titanic and Eternal Sunshine Of The Spotless Mind, and thriller series Mare Of Easttown, sent the donation and left a message for Lily-Rae Merchant-O’Hanlon on a GoFundMe page set up by her mother, Emma Merchant.
Lily-Rae, 11, from Nottingham, was diagnosed with Stargardt disease, an inherited eye condition which causes blurriness in the central part of the eye, in December.
The condition affects one in 10,000 people according to the Macular Society, and the 11-year-old is using a cane and learning braille as her sight is deteriorating.
Ms Merchant set up the fundraiser to arrange for Lily-Rae to see “the things she wants to see” before her sight gets worse – with the Northern Lights top of her list.
The pair were overwhelmed to see a £5,000 donation and a personal message from Winslet.
‘I can have mental memories’
“We were shocked,” said Lily-Rae. “We were both in tears.”
She said she hopes “to see the world” with her mother before her vision deteriorates, “and I can just have mental memories and also muscle memories of all the different experiences”.
Ms Merchant, 45, an executive assistant and DJ, said: “We’re very overwhelmed. The donations we’ve had have been absolutely appreciated.
“To have somebody such as Kate Winslet… I cannot explain how much I respect that woman as an actress, let alone now as an individual as a human being, to be so generous.
“She sent a lovely message as well. To have made it so personal was just so special.”
